I have a 5 year old daughter that has Congenital insensitivity disorder. This would be nice to meet other people like us.
kathleen said:December 1, 2013 11:33 am PST
wow its great to see that you are their to make a difference for these children so that they don't feel so alone with CIPA .your story was good to read as I know of a few people in Australia as well keep up the good work
Sarah said:November 15, 2013 10:33 pm PST
I saw your story on Yahoo and I think it's fantastic! Keep up the great work, giving happy memories to kids and families with CIPA. :)
Del Harrington said:November 15, 2013 2:28 pm PST
I was born deaf and attend a camp for the deaf every year for the past 14 years. I understand what it's like to have such a special place where you can connect to everyone. I'm glad these kinds now have this opportunity as well!
Susan said:August 28, 2013 3:26 pm PST
Congratulations to you!!! You have started something wonderful for all of these families!!! Great job!!! All the best!!!
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