My sister-in-law finally got confirmation on her daughter having CIPA. My niece is two and her mom has been doing research on this, shared with me, and told me about a camp. I wanted to see for myself and am learning all I can about it as well. This is an amazing idea and I'm sure you will be seeing her one day as well. I cant believe how many seem to have it. One site I saw said only 35 had been diagnosed in the U.S. It must have been outdated! God Bless you all for all you do!
cheryl parker said:November 15, 2012 8:58 am PST
Hurray for you! Need to find out how to send 3 of my patients with CIPA to your camp! I told them about your organization. Everyone said "shut the front door - no way!!" You have just gained a huge supporter in me!
LaToya R. Phx, AZ said:September 28, 2012 12:51 pm PST
I have heard of this rare and dangerous disorder and thought geee it's so much to be thankful for. Today in Psy 101 class we were told that a link had been sent to our email and to check it out, after watching the clip from Good Day America and then following the link to this website I want to agree with you this is what you're meant to do. Is there any way someone like myself and my family can volunteer at your camp? I'd like to teach my children that disabilities really mean different abilities so that they can see for themselves that we are all great in all of our essence and learn to help for a cause but with nothing but appreciation and gratitude as a thank you.
Cheramie family said:September 6, 2012 3:28 pm PST
God bless Isabel and her family.
Victoria Linton said:August 23, 2012 3:55 pm PST
THANK YOU for starting this camp. My daughter, Zoe, is only 7 months old & was recently diagnosed with sensory neuropathy. I know it's only beginning, and I hope one day she will be able to goto your camp.
Thank you again & we wish you all the best.
Victoria, Michael, Zach, Zoe (& Shaggy) Linton
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